Family Disease

• Druk: 2021
• Autor: Dana Lorene Creighton
• Wydawca: McFarland and Company, Inc.

Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate. Creighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother's suicide, Creighton's memoir finds striking similarities and differences in their lives and traces a lineage of family trauma. Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children.

• Kategorie:
  1. Książki »
  2. Książki obcojęzyczne »
  3. Książki obcojęzyczne - poradniki i hobby
• Język wydania: angielski
• EAN: 9781476683188
• Liczba stron: 204
• Wymiary: 15.2x22.9cm
• Data premiery: 01.01.2021